For policymakers
Family experience should inform policy.
This platform is intended to turn repeated individual struggles into organized evidence. Decision-makers should be able to understand where families live, what type of care they need, which barriers they encounter, how long they wait, and whether they eventually receive care.
Community data
De-identified experience dashboard
Dashboard figures are de-identified counts only. No medical details and no personally identifying information are displayed.
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Aggregate counts appear here once reviewed data is available.
Limited Providers
Too few practices have the training, staffing, or facilities required to support patients with complex needs.
Insurance Barriers
Families may find a provider, only to learn that the office does not accept their Medicaid plan or insurance.
Long Waitlists
Specialty clinics and hospital programs may have limited appointments, leaving families without timely preventive care.
Detailed breakdowns by state, county, care type, barrier, wait length, and outcome are prepared only from reviewed submissions, and only as counts. No medical details and no identifying information are published.
Collaborate
Work with us
We are calling for collaboration among families, disabled individuals, healthcare professionals, Medicaid agencies, managed-care organizations, lawmakers, hospitals, dental schools, medical schools, and professional associations.